Category Archives: personal

A little more love for Florence

I wrote to thank Florence’s children and grandchildren for a wonderful and inspiring celebration of a remarkable and brilliant old friend.  I’d been moved and distracted yesterday, when I spoke briefly at the memorial, during one of the breaks in the string ensemble’s performance of some of Florence’s favorite pieces, and wanted to make sure to add these thoughts:

Florence was an inspiration to many people, and to me in particular.  Her embrace of every aspect of creativity, and her nurturing of creativity in others, had a deep influence on me.  Her gentleness, her wide-ranging intellect, her humor, her love of life and her art work exerted a subtle but strong transformational force.  I attribute much of the best of who I am today to her generous, kind, whimsical influence, and her love.
 
Her beloved little brother told me, under a gentle interrogation, that she took some piano lessons for a while but never got that far on the instrument.  Still, this most musical painter’s love of music, and understanding of the underlying geometry of Bach’s music, was so profound that she could effortlessly put a counterpoint melody in exactly the right place against and among the beats and notes in a two part rock guitar jam.  It delights me as much now, remembering it, as it did when she sang that invention in real time late one night in the living room on Aberdeen Road, not long before her 90th birthday.
 
It could be said that her art deserved to be more widely known, and that she should have had some measure of fame and financial security from her brilliant, deep and masterfully executed paintings and other works.  Though she would have no doubt liked those things, I don’t think it bothered her very much as she went about her life and work.   She had more substantial things on her mind.   As Russ pointed out (and as she described in that wonderful piece about the creative benefits she derived from smoking), all of her many interests and loves seemed to focus themselves more and more into that hard to describe source of light and life energy that emanated from and flowed into the center of many of her paintings and her octamandalagons.  I watched happily as the mysterious force that Russ described shone out of the images in the slide show, as her favorite music was beautifully played and she was present, smiling, in that room.
 
I wrote this shortly after she died, and I meant to share it as well:
 
a few more words of gratitude about Florence
 
and two links to Florence’s work and words
 
two Florence links– wonderful stuff

On Learning About Other Damage Done by High Blood Pressure

I’d been worried about having a stroke each time I saw 152/100 as my blood pressure reading.  I don’t know what the stroke range is, but I know 104/70 is closer to the blood pressure I want than the, at best, borderline 137/89 I’ve been consistently getting.

“Stop fooling around,” a doctor friend who takes hydrochloride and Avapro to control her high blood pressure told me the other day.  “Your numbers, once they get elevated like that, will not come back down by themselves, your body has changed.  You’re doing damage to your heart and kidneys if you don’t get it treated.”

I call my doctor the next day to get the prescription phoned in.  We’ve been “monitoring” things for almost a year now since his eyes opened lemurlike, alarmed at my reading.   Hard to get a call back from him, missed the one I did get yesterday.  I’ll try the well-meaning liberal again on Monday.  Too bad he doesn’t use email like my urologist, but no sense stressing over how hard he is to reach.

Doing push-ups just now I felt the thickening of my heart muscle, squeezing, no doubt compromised by my high blood pressure. Must be why I’m so tired all the time too.  My kidney so far has been quiet, but, from what I understand, kidneys usually are.  

 

Dream

Remembering more dreams lately, a flurry of them in recent nights, as my imagination seemingly tries to recharge itself in the face of objectively dispiriting circumstances that call for heroic feats of imagining.  

At the end of last night’s I was, for the first time in years, back in that phantom second apartment of mine, the large space connected to my own cramped apartment where I stumble from time to time, wondering that I never use those rooms.   In the bathroom of the second apartment there was a dark blur of movement and a rustle behind the towel hanging on the rack.  It was a brown cat, at first afraid and then reassured by my quiet and calmness.  I kneeled and it came over, affectionate.  Petted the cat as I thought of the unused resources in my life and the sometimes terrible burden of our personal histories.

History can, and often does, repeat itself, but it is a mistake to feel that parallels between things happening now and things that happened in the past make the same outcome inevitable.  Dream and continue to breathe, sleep, eat well and exercise, only time will tell.

Cancer Journals

Alone, in the middle of the night, cancer victims I have known wrote long emails, sent to everyone they hoped might care.  I recall cc’s I got from two of them, one many years ago (she has survived, I saw her dancing at a wedding not long ago) and one, more recently, who was a wasted shell at my father’s funeral — held up on her son’s arm, who died not long afterwards.

 

The emails were excruciatingly detailed descriptions of cancer treatment, hopes, drug interactions, side effects, verbatim reports of talks with oncologists, nurses, spiritual advisers, descriptions of articles from medical journals.  One might call these email journals obsessively detailed.  The writers did not seem to pause for a breath, in their desire to tell the entire story, in every detail, how the drug trial, a long-shot, was nonetheless a hopeful thing, citing the literature, comparing side effects, describing how the previous chemo had made them feel, reciting many cancer terms of art with facile familiarity. They had been educated in a deadly grad school and they wrote long, scholarly emails.

 

These arrived in the night in one continuous paragraph, many screens long, or so my memory makes them appear.  I recall responding early on, and wishing them well and thereafter being at a loss, though they each thanked me profusely for writing a couple of sentences to them.  

 

One lived far away, the other I saw frequently as she grew thinner, lost her hair, grew it back, became drawn and skeletal, her beautiful smile more and more fleeting until it was just a memory.  Both wrote in the same way, writing to think out loud, writing to call out to other souls to answer them, writing not to feel so alone, awake and rattling the keys as they clung to their precariously teetering lives in otherwise silent houses.

 

I bring these up because I had an eerie feeling earlier today, thinking about some obsessively detailed emails I’d sent lately, in real time, about very specific aggravations I was going through.   The frustrations of buying mandated health insurance on the New York marketplace, by tomorrow’s deadline, for example, and having to pay $1,750 out of pocket, in addition to premium payments, before any insurance benefits kick in.  Or being dicked around by a corporation that helps nonprofits, and others, raise money on-line and does not make full payment more than a month after the campaign ends, its Customer Happiness bots cheerfully cranking out generic emails with update links that cannot be opened.  I realize the level of aggravated detail in my screeches of pain was probably similar to the emails from these two cancer patients.  Some suffer silently, others at great, sometimes unbearably detailed, length.  

 

I also had the troubling thought that diagnosed with cancer myself, I would probably find myself writing similar journals.  The odds are pretty strong both ways.  All four of my grandparents and both of my parents died of cancer, along with a young first cousin and a second cousin once removed, also quite young.  I’ve had a few small skin cancers already myself, and a few polyps snipped.  And I write by day and in the silence of night, sometimes in great detail.

 

I will now be as brief as I can as I explain to myself why I was so worked up by today.

 

On Monday a week ago I called my almost 93 year-old friend Florence, a great artist and a great soul.  She sounded befuddled on the phone, as she sometimes did.  I told her I’d call back.  When I spoke to her later she was completely clear and glad I’d be visiting her the following day.  I did.  The visit was wonderful and she looked great.  Three nights later she died.

 

I walked around the day after she died, last Sunday, feeling mostly grateful.  It was only when I told Sekhnet that Florence was gone that I found myself getting tearful.  Sekhnet is adept that way.

The following day my very promising young animation assistant was put into a terrifying position as the young man I am paying over-generously to arrive early and run the workshop showed up late and unprepared.  When I arrived the kids were one step from cannibalism, a bullied girl ran from the room.  This new group, and this promising and diligent assistant, may now be lost, the kids horses out of the barn and too late to lock the barn door. The young woman, seeing the carnage, may have been scared skittish.  I’d placed a lot of hopes on this new workshop and my new assistant.

 

Had dinner afterwards with Sekhnet, got choked up talking about a variety of things.  The next day and night I prepared a forced and muddled demo for the Wednesday workshop.  One girl correctly called the soundtrack creepy and I watched helplessly as my plans were cut to ribbons with little safety scissors.  I saw my dreams of this animation workshop flourishing and expanding littered across a classroom floor with the shredded materials that had been wasted.

 

Afterwards, after a long walk with Sekhnet, carrying heavy bags in the rain and expressing my hopelessness, she hit on an idea to help me.  Finding the 800 number for the company giving me the cold shoulder about the $450 they owed me from the fundraiser she urged me to call and straighten it out.   It was a sincere attempt to be helpful that resulted in me, on the fourth or fifth call, leaving a snarling message referring to the California attorney general’s office as Sekhnet called out the name of my nonprofit several times in the background as I tried to talk.  Wiping the foam off my lips I eventually accepted the tranquilizer she offered and found myself falling asleep twisted into a grotesque position memorialized by Sekhnet’s Blackberry.

 

A visit the following evening to an old woman dying slowly of Parkinsons, who seems to have lost the ability to communicate, didn’t feel like it brought anyone much joy.

 

Hours on hold trying to buy health insurance today, and so on.  I can add these things up and say “rough fucking week, man,” but I could not add them up in real time or distance myself in any single instance from the totality of them.  

Neither could I really get anyone to understand how unbearably painful any of it was to me, except for the sudden death of my oldest living friend.  Everyone can probably understand how much that one would hurt.

TDD (Temper Dysregulation Disorder with Dysphoria)

At a luncheon recently I mentioned, intending to share my skepticism about the evolving DSM and its 5,000 new categories eligible for lucrative psycho-pharmaceutical medications, Angry Baby Syndrome.  I smirked as I brought up the newly minted diagnosis: Temper Dysregulation Disorder with Dysphoria, a proposed addition to the fifth edition of the Diagnostic and Statistical Manual of Mental Disorders (DSM), among other things the guide for what insurance will pay for by way of pharmaceuticals.  

One of the strangers at the table, a woman with some professional familiarity with these matters, immediately nodded knowingly.  “Yes, it’s a real condition, there are some babies who just start off angry,” she informed us and the conversation drifted quickly from where I was trying to steer it.  In truth, though I am opinionated, I had no real interest in steering this particular conversation, I was merely stroking one of my pet peeves– the madness and brutality of runaway capitalism.  I worked on my vegan lunch plate, smiling neutrally as I chewed, and let my mind drift in and out of the talk around me.

I’d read a great article, given to me by my friend the now retired judge, about the meteoric rise of mental illness diagnoses.  The article was a review of several books on the boom in psychopharmacology, I’ll find it for you.  A long review, but fascinating, well-written and worth a read.  Marcia Angell begins:

It seems that Americans are in the midst of a raging epidemic of mental illness, at least as judged by the increase in the numbers treated for it. The tally of those who are so disabled by mental disorders that they qualify for Supplemental Security Income (SSI) or Social Security Disability Insurance (SSDI) increased nearly two and a half times between 1987 and 2007—from one in 184 Americans to one in seventy-six. For children, the rise is even more startling—a thirty-five-fold increase in the same two decades.  Mental illness is now the leading cause of disability in children, well ahead of physical disabilities like cerebral palsy or Down syndrome, for which the federal programs were created.  

(click here to read the article)

I can’t help thinking of TDD, Angry Baby Syndrome, in the context of a story my parents told, and believed, until the end of their lives, a myth I always took pains to demythologize.  At ten weeks old I became red and rigid, my little fists clenched, with a look of rage on my face that no amount of concerned staring or direct questioning from my frightened parents could wipe away.  With great anxiety, they rushed me to the pediatrician.  The good doctor took one look at me, began to laugh and said: “this child is having a temper tantrum!  I’ve never seen it in a baby so young, but this is definitely one angry baby!”  I recall thinking “fuck you, doc.  I’ll live to laugh at your fucking anger some day, you articulate, quack prick.  Just wait until I can talk, assbite.”  By ten months old, according to my proud mother, I was talking, though neither at ten months nor at any time after that did I bother to track the cavalier pediatrician down.

The point of this story to me was always that rather than figure out why their child was so unhappy as to be having a temper tantrum, the two young parents took comfort from the quack’s diagnosis that the kid was just irrationally enraged.  The expert confirmed my parents’ fear that their baby was just one of those born pricks– adversarial, angry, vindictive, challenging, defiant, hating all authority.  Who knew a ten week old could have the worldview to make all these judgments?   I have to believe it helped set the course of my adversarial childhood, this expert’s glib diagnosis that did not extend past a relieved chuckle.  He concluded, essentially, that this baby suffered from nothing more than being an enraged little asshole.  Kind of funny, in a way, no?

I always thought a good doctor might have felt the kid’s little fists– said to the parents, “I’ll be damned, even though it’s August, feel how cold this little guy’s hands are… maybe he’s pissed off because nobody has made sure he’s warm enough.”  Indeed, my mother reported that I always immediately calmed down whenever she gave me a warm bath, but of course, it was impossible to carry around the baby bathtub full of warm water to bathe me whenever I started becoming irrationally enraged.  

But my point in writing this is not to wonder whether TDD with Dysphoria is not a perfectly good diagnosis (why not give a pill to a young child who is just an irrationally angry bastard all the time?) or to muse about whether or not that pediatrician 57 years ago did anyone any favors, or to belatedly defend my, admittedly, infantile behavior.   

I replaced a roll of toilet paper backwards just now.  I noticed it and calmly removed the roll, reversed it, snapped it back into place.  This struck me as a great moment.  The calm fixing of a minor problem was unaccompanied by any sort of snarl, curse word, smirk, clucking of the tongue.  I still fly into a Tourretic rage when I’m leaving the house in a hurry and my ear buds are violently yanked out of my ears as the cord whips around a doorknob, or the long horn bicycle handlebars.  Part of my rage is at the randomness, seeming cruelty and absolute regularity with which these little delaying things always seem to happen, as though the universe is giving me the finger when I most need its silent cooperation.  But with today’s toilet paper tragedy, I was happy to notice myself fixing a minor problem as calmly as the Buddha.  

I took a breath and thought about the progress I’ve made from that vicious little ten week old I once was, the raging TDD poster baby.  It made me think of my father’s terrible temper, and his insistence, until right before the end, when he smartly reversed himself, that people are what they are programmed to be, by genetics and upbringing.  He always dismissed as delusional the idea that one can consciously change this programming.  My dad’s reflex, when a mistake was made by himself or anyone else, was to become instantly enraged.  I spent decades being mad at myself when I did something careless, or stupid, things that earthlings do all the time.

Follow if you can: you are snipping the ends off string beans, nipping the stem off and a bit of the tip on the other end. In one bowl the prepped beans that will be steamed or sauteed, in another the ends you will be discarding.  One after another, bing, bing, bing, the stems into the little metal bowl, string beans into the strainer.  Then, bip! stem into the string beans, whole string bean into the bowl of ends.  One would expect, at most, a little smile and head shake, a plucking out of the stem, an extraction of the string bean, and quickly restoring them to their desired places.   It would be hard for many people to understand the reflex to a paroxysm of rage when the stem gets flipped into the wrong bowl, but it is there for some.

Did my father have his face whipped all through his early childhood, and the angry course of his life irremediably stamped on his little soul, because he had undiagnosed TDD?  Did his mother, an insane little bitch, as far as I can make out, suffer from untreated TDD?  Is the reflex to be enraged carried in the DNA?  If this reflex is then reinforced by infallible repetition, can the programming to react this way be undone by mere mindfulness and a desire to not react with rage to every frustration, no matter how minor?  

Let us not underestimate the practice of mindfulness, working in tandem with a strong enough desire to change a painful reflex.   I’ve been trying to apply this principle to my dealings with others, with some success.  I have remained fairly mild in situations that would have provoked me to major unmildness before.  Imagine my delight to find myself the recipient of this forgiving gentleness in the moment of realizing how maddeningly idiotic my placement of that roll of toilet paper had been.  Noticing these small, valuable steps is a great gift we can give ourselves.

Or, an old reflex suggests, the wishful thinking of a fucking idiot.  Though I think not, whatever my father or a respected doctor might have once said to the contrary.

It’s not about the interest rate comfortable people pay

It’s one thing to nonchalantly pay your 3.85% mortgage on something that you live in, a comfortable home that appreciates in value, is an asset you can eventually sell to recoup your investment, if not also a profit.

It’s another thing entirely to pay mortgage interest four times what the banks are paying, on a house you will never live in, a house full of vermin and every kind of expensive vexation, a house of plague you avoid.  And the repayment amount exceeds your combined income for a decade.

But I’m not here to whine about interest rates on unwisely taken student loans.  There is more important business, like getting you to reading this again, with focus and attention.  To imbibe its truth, and to taste the truth of it, and to think on it a moment.

WENDELL BERRY:  But that’s the problem we’re in to start with, we’ve tried to impose the answers.

The answers will come not from walking up to your farm and saying this is what I want and this is what I expect from you.

You walk up and you say what do you need. And you commit yourself to say all right, I’m not going to do any extensive damage here until I know what it is that you are asking of me.

And this can’t be hurried.  This is the dreadful situation that young people are in.

I think of them and I say well, the situation you’re in now is a situation that’s going to call for a lot of patience.

And to be patient in an emergency is a terrible trial.

source: http://billmoyers.com/episode/full-show-wendell-berry-poet-prophet/

It Makes No Sense

Had lunch yesterday with an old friend from High School I haven’t seen in decades.  He was going to our fortieth HS reunion, I wasn’t, so he stopped in for lunch on his way to the reunion.  His life has gone in a logical line, the next in several generations of engineers, he’s been studying or working, mostly happily, in the field for several decades since graduating high school.   For the last twenty years or so he’s been at the same company, working on inventions that will do many things, including make smart bombs smarter and more precise in their targeting.  There is good money in those government contracts, the company he works for values his work, and many of his co-workers there feel like extended family to him.   He can narrate the events of his resume over appetizers, as he demonstrated nimbly over the vegetarian lamb satay.

When it’s my turn, I am at something of a loss.  Neither my life nor my description of it goes in a straight line, it jumps from my years as a bike messenger, too angry to consider any way to participate in a society that seems sick beyond redemption, to the 1981 meeting I had with a dean at CCNY who told me it was no problem to waive some requirements so I could get the remaining seven credits on my BA (magna cum laude, it should be noted).  He could not waive gym, he explained, so I took volleyball and led my team to the championship.  

The dean, a physics professor, if I remember correctly, a kind looking man with a resemblance to Kurt Vonnegut Jr., took care of the paperwork quickly and then gave a concerned look.  “That part’s easy,” he said, leaning forward and looking mildly concerned “but, I have to ask you, on a more personal level– what is someone as obviously intelligent and thoughtful as you are planning to do  with your life?”

My companion at lunch nodded, his eyes wide open.  A scientist and human being, approving of the humanity of his fellow scientist, going beyond his role and asking a good, compassionate and very logical question.  I proceeded to try to answer, weaving the story of my father’s life and death among the different periods of my life and times.  There was no line to follow, except for the evolution of my resolve to avoid argument and conflict, to be direct, and remain as mild as possible.  There was no pay-off to any of this, certainly nothing monetary, outside of  a life with somewhat less anger and violence.

Odd to say, while we walked after lunch and chatted, never once did the image of, not three generations of engineers, but three generations of angry, depressed people, seventy years ago virtually all of them murdered in ditches, burned, gassed, one of the lonely survivors whipping and sobbing over her first born, clinging in fear to a God who had clearly turned his back, come into my head.  

Just a single brief description of this enraged little redhead I know so little about, other than how she violently sowed the seeds for her baby’s tormented life, the baby who grew up to be my father.

I had a pleasant few hours with my HS friend and was left with the feeling I haven’t figured out how to make sense of much of it.   My HS friend looked at my current program through logical eyes and didn’t see why I wasn’t working as a middle school art teacher.  Better pay, benefits, same basic work.  

The finer distinctions I tried to draw about the uniqueness of my program, the integration of teamwork, children taking complete ownership of the collaborative process, peer-teaching, creative problem-solving, seemed pretty much lost on him, reminding me again how important it is to find a few people who grasp essential things about the program that cannot be quantified in a lab.  

Having said that, and not to suggest an inherent contradiction, I also need to quantify the claims I am making in a lab, in order to demonstrate to people who have money that this idea is worth funding.

That said, the only logical conclusion might well turn out to be that it makes no sense, this flickering idea of mine.  In time I will either discover this for myself, to what end I know not, or be pleasantly surprised to see a program I’ve long dreamed of alive and walking among the living, and inspiring them.

Sometimes it takes a long time to see the obvious

There are things we say, thinking they are everything we need to say.   A year or more later, sometimes, we realize there was something important we should have added, but left out.

I’m thinking about this, oddly, as I begin to keep a Gratitude Journal.   I’ve written down about, well, let’s see, 28 things I feel gratefulness about so far, collected last night during a long train ride home.  I hope to form the habit of noting my good fortune, and increasing my ability to see the small miracles that are quite common, but easy to miss if you’re not looking for them.  The love between that child and his mother on the train the other day, for example.  Or the fleeting smile on the face of the tough guy on the other side of the subway car when he saw the same thing I was smiling about, a second before he put his mask back on.

Out of the blue recently I thought of a missed chance to add a sentence or two when I should have, and it haunts me slightly that I didn’t add the important sentiment I realize now was missing from my answer.   Sometimes, in the effort to come to the point smartly, the larger point is missed.

An old friend was in town, a very talented musician and wonderful improviser, someone I love to play music with.   He was moving to the other side of the world, I don’t know if he was truly happy about it, but he was gamely moving to the other side of the world.   It would be a long time, if ever, until I saw him again.   

He and I had a mutual friend, a very good friend for many years, famously demanding and difficult.  This friend was increasingly unhappy as the years went by, and critical, and humorless. His demand for attention, inflexibility and inability to listen made him more and more difficult to be around.   He called at the worst times and always needed to have a long conversation, he always had a long, usually aggravating, story he needed to tell.  He was angry when he was not depressed, and expressed his disgust at a series of betrayals that began to look eerily identical.  He fought about being angry, claimed he was not at all angry.  Although he was extremely intelligent, quite talented and had other good qualities, those things became harder and harder to see.  The relationship became toxic to me and it finally came to a head in the weeks after my father died.  

I’d tried valiantly to have a better friendship with him, over literally several years, long letters, long conversations, but in the end I could not save the relationship.   We brought out the worst in each other and it was time to stop being  constantly reminded of what he considered my failures, hearing over and over about his endlessly repeating betrayals at the hands of virtually everyone he met.  His mother was very understanding of my position in the end and asked helplessly what, if anything, she could do to help him.

My friend the musician was in NY visiting an old friend who has always been an older brother to him.  He and his wife stayed with this old friend on the eve of their move to the other side of the world and while they were in town I was invited to join them for a quick lunch and then, a day or two later, to spend an afternoon walking over the Brooklyn Bridge with them.  

At the end of that nice walk, as we drove up the West Side Highway, my friend mentioned he was probably going to visit this former friend of mine.  They’d been out of touch a long time, he said, but he was planning to drop in.  I told him and his wife that the guy would be delighted to see them, lived in a beautiful place they should not miss while touring America, would surely show them a good time.  

The driver, my friend’s older brother, smiled at me from the rear view mirror and asked me pleasantly why it was I’d stopped being friends with him.  I smiled back and said “Truthfully, I came to realize we brought out the worst in each other.”  And that was that.  I never heard from any of them again.

I might have added that it pained me greatly to have things come to that sad end after decades of friendship, and that I’d tried mightily, and made every effort to improve things.  I might have spent five seconds to impress on them how seriously I take friendship, that I am not the categorical, black and white hanging judge who cuts off an old friend the way saying “we brought out the worst in each other” might have made me seem.   Probably would have changed nothing, but I regret not adding that bit of my humanity as my character was being weighed.

Truthfully, it was long in dawning on me that I was on a kind of trial in that moment.