Happy birthday, Mr. President.
Monthly Archives: June 2017
Why the fuck am I keeping this on-line journal?
Good question, even as I have to jet out of here in a moment. I write here, as often as I can, mainly for the feeling of being in control of things we humans have little or no control over. It makes me feel good to write. I write here to make sense of things as they happen, to the extent I can. I find it helpful and hope that what I write is sometimes also helpful to someone reading it.
I also like to keep the old writing pencil sharp, because I love the craft of writing. It is very satisfying to see words lined up to bring something into focus. I also hope, one day soon, to sell these little darlings like the adorable hookers they’re supposed to be, in the Free Market. After all, any craft unsold is just a fucking hobby (he added, with gratuitous bitterness).
Today I made an appointment for screening of my skin for more possible cancer, long overdue in part because I’ve had to find three new sets of doctors in the last three years thanks to my man Obama’s beautiful compromise with the perfect, which disabled my ability to see the dermatologist I’d been seeing for years, a doctor I liked. The earliest appointment for a new patient I could get today is for August 31, at 2:30 pm. I took it. I’m also on the waiting list for any earlier appointment that might pop up. If I’d done this three months ago, instead of being discouraged when nobody I called accepted my new Silver level insurance, I’d have an appointment for next week. Of course, I’m free to call as many other dermatologists as are on my insurance company’s list, in the meantime. This is America, after all. In the meantime, I fucking write.
I’m being pressured to begin immunosuppressive therapy for my kidney disease. This therapy includes three months of steroid treatment, in alternating months (chemotherapy type agents are administered every other month) each month beginning with three days of IV infusion of steroids. I am trying to educate myself about the disease before committing to this pharmaceutical blunderbuss approach. I read this just now, from the Mayo Clinic:
Membranous nephropathy (MEM-bruh-nus nuh-FROP-uh-thee) occurs when the small blood vessels in the kidney (glomeruli), which filter wastes from the blood, become inflamed and thickened. As a result, proteins leak from the damaged blood vessels into the urine (proteinuria). For many, loss of these proteins eventually causes signs and symptoms known as nephrotic syndrome.
In mild cases, membranous nephropathy may get better on its own, without any treatment. As protein leakage increases, so does the risk of long-term kidney damage. In many, the disease ultimately leads to kidney failure. There’s no absolute cure for membranous nephropathy, but successful treatment can lead to remission of proteinuria and a good long-term outlook.
You have to admire the candor of “in many, the disease ultimately leads to kidney failure.” Regardless, I have my life to live, and a nice box of chocolates to buy for a 95 year-old birthday girl, who I have to dash off to see after a shave and a shower.
I feel so much better having taken this little break to practice my word arrangement. Thank you, Diary Dear.
I Don’t Know How Amy Goodman Does It
I admire Amy Goodman. She is plain-spoken, hard-working, fair-minded, idealistic, undeterred, reporting important, often otherwise unreported, stories every day. I am informed by her reporting, learning things you never hear from the wealthy talking heads of the main stream media, the consolidated, advertising-driven corporate mass media even our president reviles. Watching her update for today just now I noticed this by the side of the video:

I know about this story from Democracy Now! and the reporting of people like Jeremy Scahill (a one-time protégé of Amy’s, if I’m not mistaken). Yemen, one of the poorest countries on earth, is being assaulted by Saudi Arabia as the wealthy oil producer seeks to keep Shia militants from taking over control of Yemen, an impoverished country bordering Saudi Arabia. Our president, moments before doing a sword dance with leaders who behead heretics and protesters in their nation, announced the great deal he made with the Saudis. We are giving them a very good deal, we learn, on $110,000,000,000 of America’s best armaments, munitions, weaponry, planes, drones, bombs, missiles.
The Saudis are putting state of the art American weapons to good use against their Shia rebel enemies in Yemen. Saudi ordnance is killing the Houthis, and anyone else within range, as the Saudis lead a coalition of other wealthy Arab nations intervening violently in the civil war in Yemen. Meanwhile, in Yemen, the poorest country in the Middle East, there is what the United Nations calls a massive humanitarian catastrophe underway. Among other horrors, people are dying of cholera, an ancient disease that today mainly effects those living in poverty.
Cholera, google tells us, is an infectious and often fatal bacterial disease of the small intestine, typically contracted from infected water supplies and causing severe vomiting and diarrhea.
With all the problems we Americans have at this moment, is it any wonder that only six people have watched the Democracy Now! report on the cholera deaths in Yemen? After all, nobody knows that doomed child staring out of the youtube hero frame, one of countless poor brown children doomed to die today in dozens of war zones all over the world. It’s not as if the anonymous child is an American kid from Connecticut, a young individual with a name, a cute school photo, a bright future and grief stricken parents, caught in a preventable but, for him, deadly epidemic. Yet Amy Goodman persists in reporting the “anonymous” kid’s terrible story. God bless her.
Amy followed up on the ongoing Saudi white phosphorous war crime issue today. What is white phosphorous?
In September 2016, The Washington Post reported that Saudi Arabia “appears” to be using US-made white phosphorus munitions against Yemen, based on images and videos posted to social media. Under US regulations, white phosphorus is only allowed to be used to signal to other troops and to reduce visibility in open ground, creating a smoke-screen. It is not to be used to attack humans as it burns human flesh down to the bone, which is considered excessively cruel. A United States official said the department was looking into whether the Saudis used white phosphorus improperly.[376]
Look, I get it. We can all agree that using a weapon, even one made in the U.S.A., that burns flesh down to the bone is excessively cruel. War crimes are horrible, whether allegedly committed by our allies, by our troops or by our hated enemies. Who wants to read about that kind of thing, an atrocity we are utterly powerless to stop in any case, when we can all rally around even a foolish American president who drops a gigantic bomb that is magnificently filmed as it falls and fills the night with majestic flames?
If, as Amy reports, an armed U.S. Reaper Drone in the skies over Somalia rained down several Hellfire missiles yesterday, and reportedly killed a bunch of Al Shabaab militants in a camp, isn’t that something to celebrate? We are killing the terrorists over there before they can kill us here. This is the War on Terror that Bush and Cheney started, and it will take more than the rest of our lifetimes to finish the job. It would take Jesus Christ himself, punching out the American president on live TV during prime time, to change anything about this sacred and lucrative war against religious maniacs who want us all dead.
And still Amy Goodman reports, and endures, and finds hope wherever it is to be found.
In other news she reported this morning, the attorney generals of Maryland and Washington D.C. have sued the president for alleged violations of the Emoluments Clause, a provision in our Constitution which makes it illegal for a president to take money, or anything else that could be counted as a bribe, from foreign governments. The suits center on the millions this president has allegedly received so far from foreign governments who were paying guests at the president’s hotel in Washington D.C., including dignitaries from Saudi Arabia, Turkey and Kuwait who have all paid to stay at the hotel since the inauguration. I’m sure the Grey Lady reported that one today, too. I see that within the last hour or so many mainstream news services have jumped on this story. God bless the press.
Here’s an inspirational moment from today’s Democracy Now! broadcast.
Was Rigoletto a hunchback?
I thought of Rigoletto out of the blue just now. I seem to recall my mother, a great opera fan, telling me that Rigoletto was a hunch-back. I asked Jeeves if that was so.
Rigoletto (pronounced [riɡoˈletto]) is an opera in three acts by Giuseppe Verdi. … Its tragic story revolves around the licentious Duke of Mantua, his hunch-backed court jester Rigoletto and Rigoletto’s beautiful daughter Gilda.
You can’t make this shit up (though somebody, apparently, did).
Institutional Personality
This is not the time to write this, but I want to jot it down right quick before I forget. Institutions actually have personalities. It is related to the legal fiction that a corporation is a person under American law, but much more tangible. To be direct: a corporation is a “person” with only one consideration– maximizing profit to itself and its shareholders. The corporation, as a person, is essentially a very powerful psychopath, a constantly advancing predator incapable of anything but feeding. Institutions, in contrast to the stark personality type that is the modern corporate “person”, actually have distinct personalities. These institutional personalities are expressed in how they treat the people they deal with.
I give one example, then I’m out of here. Two hospitals, both with fine doctors (and asshole doctors) both with considerate support staff (and inconsiderate support staff). This is about their institutional personalities.
Columbia has a hospital, it’s corporate identity has changed a few times in recent years, it was called Columbia Presbyterian for many years, it’s now New York-Presbyterian, apparently. The hospital has no Patient Advocate or ombudsperson. Its billing is done by a third party. The bills they send are non-negotiable. Sometimes the bills turn out to have been sent in error, but in all cases they are the responsibility of the patient to pay or make excuses to the third party billing service until they can be straightened out with the insurance company. There is no discount offered, the fee is the fee and it is not negotiable. If you are indigent, and can prove it at an off-site office, charity may pay your outstanding bill. Otherwise, have a nice day, you will get collection letters from our attorneys if you do not remit.
From time to time the Columbia hospital non-profit corporation sends, amid collection letters from their lawyers, solicitation letters touting their generous service to the community and seeking your tax deductible donation. This institutional personality is what’s known as an asshole. The personality likely reflects that of the wealthy, supremely talented twat who accepts his multi-million dollar salary to captain the charitable ship of the hospital he’s so rightfully proud of.
NYU hospital, next door to Bellevue, is another large, non-profit operation. I had a problem recently getting medical records. One call to a very nice woman at the Patient Advocate’s office quickly resolved the problem. I’d been informed two weeks earlier, that I owed $2,100 out of pocket, an advance payment, before they’d perform the renal biopsy the following day. When I expressed dismay and asked about financial assistance, I was given the number of an office that quickly relieved me of the $2,100 copay, based on my income and the large payment my insurance was making on my behalf. I had a letter confirming the waiver two days later. When I got NYU’s solicitation letter the other day, I did not feel bitter at all.
It would not surprise me at all if the board members and executives of Columbia and NYU eat dinner together every week at the same exclusive club, frequent the same high class house of prostitution, support draconian economic policies that only benefit them and indulge in every other refined behavior that goes with being in the 1%. I only know what I have experienced of the personality of the two institutions. I prefer the one that is not the asshole.
The Skeleton pipes up
“Uh, Elie,” said the skeleton of my father, “I don’t mean to put any pressure on you, or speak out of turn, being long dead and all, but…are you even thinking of getting back to work on the book about me you’re 760 pages into? Or 860 or whatever that ridiculous number of pages is now?”
Yeah, I’ve just been gettin’ ready to do that, as the kids in Harlem used to say, echoing that old overseer-placating slave meme, and I’ve been meaning to write something here. I realized the other day that I need to start from a place I haven’t even seriously considered– putting myself directly in your situation. I have never been poor, not for a day. I haven’t made any money in my life, I don’t live a particularly lavish life on my subsistence income, but I’ve never been hungry, never been fearful about where I was going to sleep, never been mocked because I was a poor boy by kids whose families had a little more. Your dire poverty until you went into the army is not something to gloss over as I discuss your obsession with making a living, being a tireless, unappreciated, angry breadwinner and all the rest of it.
“Well, you hit something there, Elie, the utter thanklessness of my life. I started out behind the eight ball and you never really recover from that. I think you and your sister began to understand that when you were much older, but as kids you were pretty much complete pricks. I was raising privileged versions of the kids who used to give me shit when I came in with those Relief glasses, the wireframe badges of extreme poverty. Then, I finally have my own house, and a car, and suddenly there are two pricks with my own DNA persecuting me over their steak dinner every night, in that old familiar way.” The skeleton looked off toward the Hudson River, nearby but invisible from his grave.
“At the same time, I know it was fair play on your part. I was a total prick to you guys. I understood only as I was dying that I had a choice, choices, all along that I didn’t even consider. I always felt I had to hold my rage in check, always had to be right, always in control. I was emotionally out of control, what kind of man calls his beautiful little girl an empty-headed vain person with no character? The things I called you are equally hard to justify. Your mother and sister both have phobias about snakes, I don’t particularly like them, you have never held one. What kind of father calls his son a fucking cobra and a rattlesnake?”
Well, I always took it in the spirit it was given, as you recall. I was like some of the lower achieving black kids who were bused into my elementary school, after a long and ugly fight against it, ten years after Brown v. Bd supposedly ended segregation. If they were going to be treated like animals, by teachers like the racist Harriet Bluming, who I had in fifth grade and even then recognized as a deeply disturbed individual, then, fuck it, I’m going to act like an animal. You’re scared of rattle snakes? Let me give my tail a little shake for you, you like a little cha-cha rhythm?
“Well, you make light of it, and I guess that’s the only way to do it, but paint the picture however you like, there’s only so much lipstick you can put on that particular pig,” the skeleton looked off into the distance again. “Why some pigs wear so much lipstick, I’ll never know.”
OK, listen, dad, I have to get up and stretch, get down to Sekhnet’s. I’m having cramps in both my legs today. In fact pains in my legs, and muscle spasms, woke me at around 6 a.m., which really sucked. I suppose I’m being welcomed to old age. Or maybe, undiagnosed, like you were, I’m suffering from something more ominous than the chronic kidney shit they’ve discovered so far. These doctors, as you know, only see what their particular lens reveals. As for the rest, go sue another specialist you should have consulted if you didn’t want to wind up in the ER, diagnosed six days before your death.
“OK, calm down, calm down. We’ll take this up next time. Or rather, you will. Go do what I should have done– stretch, relax, maybe go ride your bike a little. We all have to go sometime, but I’m proud of what you’re trying to do before you go. Just wanted to tell you that.”
That’s good to hear, even if I have to have you say it myself.
Extracting an Unconditional Apology
I don’t know if the exercise is really worth it, but, under certain conditions, with sufficient detachment, moral suasion, carnivore cunning and mild-mannered treachery, an unconditional apology can be extracted, even from a doctor or a lawyer.
The nephrologist had her receptionist call me after I sent her a summary of my recent attempts to get the update she’d promised on my recent biopsy. This neutral summary was what lawyers call “making a record”. Making a record is done to prepare the grounds for argument in the legal case– anything you write, like a memo, could be used as evidence.
It’s like Trump’s lawyer Marc Kasowitz making a record that there is no evidence whatsoever that the president ever used anything beyond precatory, non-legally binding, aspirational language, when he had FBI-director Comey alone in a room and expressed his hope that Comey would dummy up about Flynn [1] and lay off the investigation into the good guy’s possible problematic entanglements. Therefore, as a matter of law, based on the explicitly precatory language all parties agree was used, no direct order was given and therefore there can be no obstruction of justice. Plus, of course, Kasowitz added, although nothing he said implicated his client in anything, Comey was lying his ass off under oath while the president is always truthful.
My note to the nephrologist, which became part of my permanent medical record at the hospital once I hit ‘send’, presented the facts without editorial comment, but in a pretty dim light for the nephrologist. Her actions did look pretty bad laid out end to end, the lack of communication was clearly one-sided. It would look pretty bad to any department chair reading it by the time I ended asking “am I missing something?” and signed it Eliot. I also called the Patient Advocate at the hospital to express my concerns and find out why nobody was forwarding the medical records I’d requested.
The nephrologist’s receptionist called me few moments later, to tell me the doctor herself would be calling me and that they would be forwarding the medical records I’d requested. A short time later the receptionist called back to ask me to hold while she connected me to the doctor. This transfer took just under two full minutes, which, while annoying, was not comparable in its effect to her previous behavior and attitude. She began to remedy that as soon as she picked up the phone. After a moment of silence she asked what I wanted.
“I want the update on what the biopsy showed about the progression of my kidney disease,” I said, and things went quickly downhill from there. I was soon told that I have unreasonable expectations, am a very nervous patient, smart but also nervous and with unreasonable expectations. I told her I expect people to do what they promise to do — until I learn what it is unreasonable to expect from a particular individual. I stop expecting what experience teaches me to stop expecting. I disputed that I have unreasonable expectations, took exception every time she mentioned it, but since it came up several times, it got me to wondering about the phrase.
There were several attempted if-pologies (tip of the tam o’shanter to Harry Shearer) for how I apparently felt as a result of our mutual miscommunication. I rejected each of these pseudo-apologies forcefully, explained what was objectionable about such false, conditional, self-serving apologies. She was not taking responsibility for her actions and inactions, she wasn’t apologizing for how those actions and inactions effected me, she was apologizing about my unreasonable expectations, fears, excessive nervousness that made me see monsters where there were only puppy dogs and kittens. (detailed anatomy of an if-pology here)
In the end, seeing the folly of having a conversation with such a desperately defensive person, and sick of having to raise my voice to cut in whenever she cut me off and talked over me, I told her she was a good person and wished her a good day. Then I took a few deep breaths, muttered politically poisonous words that should not be printed, took a few more breaths and called the kind woman at Patient Relations at the hospital.
I thanked her for her earlier kindness and gave her a report of what had happened since she made her call to the nephrology department. When I reported to her that the doctor told me that I had “unreasonable expectations” and was a “very nervous patient” Joann seemed genuinely offended that a doctor would say those things to a patient she’d been ignoring. I asked Joann for the only actions I could think of — to inquire about a waiver of my $237 out-of-pocket payment for my next office visit and a recommendation for a less combative in-network nephrologist. (Thank God I have Obamacare, Romneycare, Patient Protection and Affordable Private Corporate Health Insurance Out of Pocket Deductible Care, Lobbyistcare, VultureCapitalistcare, HealthInsuranceandPharmaceuticalindustrycare, Corporatepsychopathcare, is all I can say. Can you imagine how prohibitively expensive and stressful the visit might be without health insurance?)
I then spent the next few minutes trying to figure out how not to seethe. I went to the post office. Not generally the best cure for a need to seethe, but today at 4:00 the place was virtually empty. I joked with the guy behind the window and we both had a few laughs. The guy at the next window got in on it, and another patron did too. We were all laughing together on a Friday afternoon. All the sweeter that we were like the United Nations, representatives of four continents.
The guy helping me, the representative of Asia, was gone for a long time, came back with my stamps then stood there, looking down, seemingly texting for a long time, while I stood there waiting to pay him for the stamps that were right next to him. I watched him bemusedly, as he regarded his phone with a pleasant smile, tapped away, seemingly got a funny text in response, paused to savor it, tapped his reply. It went on for a few minutes. I just looked at him, somewhat in awe. Then he asked for my credit card, which I gave him. When he handed me back the card I asked if I needed to swipe it. He smiled, shook his head and held up the small device that he’d been tapping into. I started to laugh.
“Oh, man,” I said to him “that whole time I thought you were texting.” He laughed.
“No, really, I was fascinated, I was admiring how brazen you were, how you seemed to be taking your time, really enjoying each text that was coming back from your friend. I figured you were typing ‘place is empty, one hour to weekend, one asshole customer waiting, just standing there, not doing anything, blank face, stupid expression, LOL!'”
We had a last yuk and I headed back up the hill to my apartment, 40 U.S. stamps and 2 stamps good for Europe in my shirt pocket. Plan to drop a note to Macron, just to tell him his name is hilarious and ridiculous.
I sat down and watched the mirthful, merciless late night comedians on youTube, all of them with millions of hits, slowly turning POTUS over a slow fire, slathering on the barbecue sauce (for all the good any of it does). I was finally beginning to feel a little relaxed, after more than a week’s escalating, endless battle with a stubborn jackass of a nephrologist. My phone rang.
It was the nephrologist, she felt terrible, she’s not that kind of person, not malicious.
“I never said you were malicious. I don’t think you’re malicious.”
“I’m calling to tell you I feel terrible about our conversation. I don’t sleep at night after a conversation like that, I’m not that kind of person, I do feel very bad about our miscommunication.”
“Don’t feel bad about that,” I said, ” it wasn’t really ‘our miscommunication’ anyway. If you want to feel bad about something, feel bad about not doing the empathetic thing, the thing you’d want me to do if our places were reversed. Feel bad about telling me I have ‘unreasonable expectations’ and that I’m a ‘very nervous patient.'”
“I never said you had unreasonable expectations and I don’t say nervous in a bad way, I’m very nervous myself…” she said quickly and with utter conviction.
“You repeated several times that I have unreasonable expectations for expecting to hear back on test results, but I don’t even care about that right now. If you want to apologize, at least know what you did that you should feel bad about, what you’re actually apologizing for.”
“I apologize if you feel that I was neglectful of…” she began.
“No,” I said, “I don’t accept your conditional apology, forget it. You cannot apologize for how I may have felt. You can only apologize for what you did. It’s no apology if you condition being sorry on what I may or may not have subjectively felt.”
“You apologize for what you did, that you understand now was wrong. ‘My actions hurt you. I was wrong. I am sorry that I hurt you.’ “
“It’s no apology to say I’m sorry if you were hurt. You have to acknowledge that what you did was hurtful, would have hurt you too, or anyone else. That there was nothing unreasonable about being hurt by the hurtful thing I am so sorry I did to you. Then you have to promise to try hard not to do it again. That’s an apology.”
“I apologize without conditions,” she said.
I thanked her for that, and happily accepted her apology, although with conditions.
God must have been smiling down on me in that moment, for the call from her cell phone dropped, she texted that I had suddenly stopped talking, that we seemed to have lost connection. I texted back that she must have gone out of range, I was still sitting at my desk. I ended thanking her for the call, and the apology, and wishing her a good weekend.
But do I really?
[1] The greatest accomplishment of Flynn’s military career was revolutionizing the way that the clandestine arm of the military, the Joint Special Operations Command (jsoc), undertook the killing and capture of suspected terrorists and insurgents in war zones. Stanley McChrystal, Flynn’s mentor, had tapped him for the job. source
American healers
The first example is a veterinarian with a thriving West Village practice. He informed us last week that, sadly, the second set of blood tests confirms that the cat has a terminal kidney condition. We can hope to extend his life, have him around a bit longer, he said, if we learn to give him subcutaneous hydration and do it daily.
We immediately make plans to visit his office, to learn how to apply this liquid through a line and a needle under the flexible skin and fur on his back. We also have a few questions for the vet. A young technician gives us the demo. The doctor does not so much as stick his head in the room, nor does his colleague, another vet who sent some interactive and empathetic emails to Sekhnet.
The following day at home Sekhnet expertly applies the needle, I wrangle the cat, run the line, squeeze the bag to hasten the flow of the liquid. The Baron tolerates it reasonably well. I wind up emailing my questions to the vet.
One is about stopping the fight to give him a hated, foul tasting phosphorous binder by syringe forced into his mouth. Although it’s a primary weapon in slowing feline kidney deterioration, it makes the Baron furious and bitter and we’ve decided to stop forcing it on him. I ask about an alternative powder form we may be able to mix into his wet food or treats somehow. I also ask how far along the downward slope of the chronic, deadly disease Skaynes is, in terms of kidney function now vs. end stage kidney function. I express our disappointment at not having been given a moment to bounce these things off him in person when we were at his office to see him the other day.
He writes, helpfully and sympathetically:
He does have what is termed chronic renal failure, meaning he.s losing his ability to filter and eliminate fluid waste, conserve water and control electrolytes. It does tend to be progressive at a very individual rate. They can be around for six months to a couple years, is my experience. His blood pressure result was 165, which is normal. He should get the low protein diet daily, with fluids. I.m not crazy about the aluminum hydroxide either. If he is becoming intolerant, then I say stop it. Try the epakitin and we.ll check his blood again in three months.
Then, addressing my human concern, as a human who just brought a fatally ill animal he loves to a doctor for beloved animals and was disappointed not to get a moment of the doctor’s time:
I usually have technicians provide fluid demos and do blood pressures. Let me know in the future if you have concerns I specifically need to address.
I can read this now, four or five days later, in a neutral light. He is telling me his ordinary procedure for these demos and letting me know that in the future I should not hesitate to make my concerns known to him if they were not addressed by his technician. He was probably taking care of his day’s correspondence and didn’t pause to realize he was writing this to a person with all the concerns of someone bringing a dying long-time pet to the doctor (plus, unbeknownst to the vet, anxious about impending news on his own kidney disease). In a better world, where he would have had the time and sensitivity to look over the email before sending, he could have done much better. Reading it now, I hardly see what infuriated me so much when I first got his reply.
At the time I got it, ten minutes after I wrote him, it hit me like poison. I read his email shortly after the first time we gave the Baron the fluids, and I decided we were done torturing him by forcing the aluminum hydroxide down his snarling mouth. I read the vet’s last lines as: you should have told me if you had concerns, not really my fault, kind of your’s, that you didn’t get to express your worries to me. Kind of odd for a person who had specific questions while he was in my office, to be whining about not asking them a day later.
It was a slap in the face, piss down the back of my leg, a knee in the privacy (as a kid in Harlem once said). I felt, in light of my deep surge of righteous indignation, that I’d been admirably restrained in writing an email that, in the cooler light of a fresh read a few days later, I’m glad I didn’t send. I wrote:
Thanks for this update. Glad to hear his blood pressure was normal. We’re discontinuing aluminum hydroxide and ordering Epakitin.
As far as your last sentence, why would somebody bringing a beloved pet with a recent diagnosis of a fatal disease need to alert the vet to having concerns? In your experience, is there anybody in that situation who does not have at least a couple of concerns?
An apology, no matter how mild, for not giving us a minute or two the other day, would have worked a lot better than citing your usual policy of having technicians conduct the demo in how to prolong a chronically ill cat’s life.
Eliot
I would have been within my rights, perhaps, but I’d be making things snide with a busy, caring vet who arguably hadn’t written the most sensitive sentence he could have come up with to address our feelings. Assuming he was even capable of writing a more compassionate sentence. Coming up with a sentence like that is not within the repertoire of most people, even highly decorated poets of public relations struggle over perfectly calibrated expressions of professional/personal sentiment.
My reply, though superficially polite, would have hurt the feelings of someone who most likely hadn’t meant to hurt Sekhnet’s and mine at all. On the contrary, he’d just answered all of our questions in a reassuring tone, what the hell was I chastising him about? It would have confused him, struck him as completely unfair, insane, even, and it would have pissed him off. It would have done nothing good for me, Sekhnet or Skaynes either, or any of our future meetings at the vet’s office.
My friend’s father’s father collected wise little sayings that he wrote, in a meticulous hand, on small cards. They were written in Hebrew, and the small stack of words to live by were read by my friend after his grandfather passed away. One said: all delay is for the best. The meaning was, if you feel you must act, it is better to pause first, to consider, to calm down, if needed, turn the planned action over in your hand another time.
Example Two
I caught myself this afternoon ready to punch out the fucking nephrologist. It took very few text and email exchanges before it got out of hand and, once it did, I stopped myself from writing back. To be sure, I did unleash a nice, clean, snapping punch to her fucking smug, self-justifying, bureaucratic, inhumane, insecure face. I left it in my drafts folder, it laid her on the canvas groaning. But I did not send it.
Flashes of her worst traits, her more hideous assertions, flew out at me unbidden all evening. She is now demanding I pay her another $237 out of pocket, and visit her office, any Friday I choose, for the results of my May 26th biopsy, results she’d started giving me over the phone last week, results she promised to phone me about as soon as they came in.
The results came in, possibly days ago, these were the only medical records so far not sent directly to me, the patient. Then I was treated to no reply, insistence and unrepentance, all of the highest order. Thoughts of her overbearing insecurity and shabbily slapped together legalistic attack on a patient, anxious and aggravated after 12 days (thirteen now) with no news on his kidney biopsy results, enraged me anew each time I thought of this distasteful creature’s behavior.
I have been diagnosed with a kidney disease called idiopathic membranous nephropathy. At least I hope it’s idiopathic, meaning they don’t know the cause and it’s not secondary to some other more systemic autoimmune disease like Lupus, MS, or some kinds of cancer. The disease is a progressive autoimmune disease that ends, if not cured first, with dialysis or a kidney transplant, or, if those options are unavailable, death.
It is obviously important to know what stage the disease has progressed to when deciding on treatment options, most of which involve long regimens of intravenous steroids and immuno-supressant drugs, similar to the cocktails used in chemotherapy. A biopsy is the most accurate way to determine what stage the disease is at. So I had the biopsy, thirteen days ago.
When this nephrologist first tested me in April, to see if I was among the approximately 33% of membranous nephropathy patients who undergo spontaneous remission, I got test results emailed to me by a corporate third party. I contacted the doctor’s office, since the most crucial test for this disease, the ratio of creatinine and protein in the urine, had no standard range I could compare my numbers to. The test result/billing/appointment bot suggested I call the doctor. I did. I called again. I wrote.
The last thing I wrote used “unconscionable” to describe incomprehensible test results sent by marketing/billing/medical record bots to anxious patients without medical interpretation attached. It was, in the end, five days before she called to say, after apologizing for the terrible delay in getting back to me, that my numbers were slightly worse than in the January test. I was not experiencing any kind of remission, the disease was progressing.
When the numbers were retested in May she wrote preemptively to tell me she had strep, had gone to the Emergency Room, and couldn’t talk on the phone. She promised to call with the results, as soon as she could talk on the phone. I wished her a speedy recovery, not bothering to point out that strep had no effect on her ability to type. Again it was five days with uninterpretable test results before I heard from her. Again the test showed the disease was progressing. She thanked me for my concern with her strep, in place of an apology for once again keeping me hanging for five days.
So I had a biopsy, thirteen days ago. This biopsy would show, I was told, exactly what stage my membranous nephropathy was at. Based on the stage, it would be more or less urgent to begin steroid-heavy immunosuppressive treatment, the only option in American corporate medicine, immediately.
I had a call from her as soon as she got the preliminary results, a few days after the biopsy. There was some good news, no scarring on the kidney. This means once the underlying disease is cured, if it’s cured, the kidneys should be as good as new. She promised to get back to me soon with the rest of the report. I never heard another peep from her. On day eleven I emailed:
It’s now eleven days since my kidney biopsy. Any news?
On day twelve I wrote:
Twelve days with no results from my kidney biopsy. Any idea what the delay is? Are they growing a culture? Your insight will be appreciated.
After a few more hours with no insight, or anything else, from her I texted her on her cellphone, a number she’d given me to follow up on the biopsy results. Immediately after my text she made an appointment for me, two days later, on a day I’d already told her was impossible for me to come in. She acknowledged in a text that I was anxious and then said she truly believed we had discussed the date for the appointment she made and offered no word on the results of the biopsy. She got very shitty when I told her to put herself in my position, waiting for this news, and getting only silence and bureaucratic non-replies. Clearly her feelings were hurt. She wrote:
Dear Mr. Widaen,
We had preliminary conversation about your renal biopsy result over the phone (the week of 6/29/2017) and discussed that appointment 2 weeks after biopsy would be adequate time
to receive a full result that we would discuss once you come in.
I am sorry but I do not remember that you said this Friday was not good (I remember last Friday was not good) and I truly believe we set the time to meet this Friday.
However, it is not an emergency and if this Friday is not good for you I can meet with you at your earliest convenience next week or the following week.
I understand that you are anxious but I was not able to reply immediately.
For further communication, please use my chart and you may call office to leave an urgent verbal message.
Please let me know when you would like to come for an appointment.
>I replied, insula aglow:
This is very similar to your previous replies. Last Friday was not good because it was the day of my renal biopsy, as you could probably know because you were there [this was a low blow, and an inaccurate, emotional blunder, my biopsy was actually two weeks ago Friday-ed.]. I am anxious about the results, which should come as no surprise, and it is neither professional, nor humane, to respond in this bureaucratic fashion. Imagine how you would feel in my situation, twelve days after a kidney biopsy, if you can.
Then it was her turn to be the tough guy, doubling down on the bureaucratic prerogative:
Mr. Widaen,
Your renal biopsy was on 5/26; 2 weeks after biopsy would be this coming Friday and that is what I had on my schedule.
Despite “lack of communication” I do remember about you and remember to reserve an appointment spot for you.
Again, I am sorry for assuming that you are coming this Friday and we would have a full discussion as planned.
Please let me know when you would like to come in for an appointment.
Fool me three times, go fuck yourself. I was angry at this point. She’d promised me a follow-up telephone call as soon as she had results. She promised me this again when she called with the preliminary results about the lack of scarring a week earlier. Instead, she claims to understand that I am anxious, equivocates about a “lack of communication”, corrects me on my stupid error about the date of the previous Friday, claims to have never forgotten about me, even as, coincidentally, she remembered my case immediately after my third reminder text, apologizes for an incorrect assumption, gives no further information on renal biopsy and the status of my disease and stands by her previous offer, to have me come in and pay her $237 out of pocket once again to find out what the biopsy showed.
You can picture how many new assholes my terse email response ripped in every part of this poor woman. I, thankfully didn’t send it. Brooded for hours longer, then finally calmed down enough to remember that you don’t win a fight with somebody like this. This morning I sent her a secure reply:
Please send the biopsy report to my primary care doctor, so and so, here is his fax number (…) his telephone number is (….). Thanks.
Now, with my metrocard, on to the subway to see the sights! Up, up the motherfucking high road, pirates!
Obama/Romneycare Update
Finally had my appeal at the New York State of Health (NYSOH). It was done over the phone by an Administrative Law Judge who identified himself only as “Steve”. Only five months after the determination that I do not qualify for the subsidy on my premium, called “the tax credit”, even though my income clearly does qualify. These things are complicated, as everybody knows. It’s not as if anybody at NYSOH can punch in my projected 2017 income and see the exact amount of the subsidy the law entitles me to within three to five seconds. Oh, actually, they can.
Here was the problem. There is apparently a regulation, at NYSOH, not necessarily unpublished, but virtually impossible to find or even learn about. It could be part of some other administrative code, possibly the CFR or some New York State code, also not easily accessible, but nonetheless on the books and available to extremely tenacious members of the public. This reg allows NYSOH, in the case of a citizen who files a tax extension and files a return after the 4/15 deadline, to disqualify an otherwise qualified citizen from receiving a future tax credit he is otherwise eligible for. Nothing arbitrary or capricious about that, obviously.
If one knows this is the reason, they can provide a copy of the tax return, and something called a tax transcript (and beware, there are several kinds, and only one will work– also, they cannot be requested on-line, or over the phone, the IRS is very, very busy), and, technically, the disqualification should be “cured” and the tax credit retroactively restored.
That’s not how it works in Donna Frescatore’s nominally public agency. If I were an employee of NYSOH I’d be violating their strict stated policy by revealing the name of the public agency’s director, but… luckily, I don’t work for her. I am sure, by the way, that she is lovely and highly qualified, and very concerned. I’d be the last person to suggest that she is an uninvolved, disinterested and unaccountable political appointee.
So, anyway, I was disqualified from the tax credit I’m eligible for, for a reason that was never disclosed to me, and not notified of my ability to “cure” the disqualifying event. Relatively straight-forward, if you have a lawyer to research it and explain it all to you. I “cured” the situation in February. Nobody at NYSOH looked at the uploaded documents or made any kind of reassessment based on them, I was already scheduled for an appeal, which would be held within three to six months.
Steve was very professional, unlike the previous Appeals officer, who called two months after my vexing problem was behind me (being kicked off health insurance for two full months because of an error a telephone rep made while “helping me” against my strenuous objections) who could not grasp the concept of “mootness” (too late for the court to do anything about something that already happened, did it’s damage and was already fixed to the extent it can be). Steve promised me his written decision. In terms of a timeline, he answered that the law gives him ninety days. He suggested it would be sooner than that.
I say call Obamacare by it’s correct name, Romneycare. Romney is a very rich man whose wealth, we hear, is largely based on what some judgmental people call “Vulture Capitalism”. These vulture entrepreneurs look for lucrative companies which they can strip down to bare bones, making them “lean” and sexy for resale. They get rid of “fat”, employees, employee benefits, services offered by the company, things like that. Once they’ve trimmed down a company for sale at a discount price, they sell it to the highest bidder. It’s like flipping a house, but on a huge scale that effects many more people.
Let’s call Obama what he was, is, will always be. Sekhnet urged me to make no reference to what Bill Maher recklessly called himself the other day. Fine. Yeah, Obama was hated by entrenched racist fucks in both houses of Congress, as well as by a significant portion of the American people, many of whom still believe he is a Kenyan Muslim. Many Americas, as shown by our last election, would rather have an unabashed sexual predator with a tenuous relationship to facts as president than someone with 50% African genes, or even someone endorsed by such a person. Let’s leave his race out of it then. Yes, he was constrained in what he could accomplish, as all presidents are. Let me, therefore, just call him what he also is: a smarter, hipper, better looking, better speechifying, more charismatic Mitt Romney. You read it here first, in the fake, liberal wordpress.
A Search for Truth
Reading Amy Goodman’s wonderful, terrible new book, which is a search for truth, I was struck again by one of the habits of highly successful psychopaths. They have learned what gangsters and abusers have always known: never admit fault for anything. Amy describes situation after situation where atrocious things are done, often in our name, and the punishment is placed squarely on those who reveal the crimes, rather than on the criminals. Ensuring a lack of transparency is one of the key habits of highly successful psychopaths. Deniability is everything. “If you can’t prove I did it, go fuck yourself, ass bite. Maybe YOO fucking did it? Eh, fuckface?”
Poor people, we are often lectured by conservative pundits and politicians, fail to take personal responsibility for their situation. If they would only admit it was themselves, and not somebody else, who was born poor and hopeless, they could begin the process of taking responsibility and pulling themselves up by their own bootstraps. Indeed. Even the cliche is perfect. Picture how one would actually pull oneself up by her bootstraps. I did not do well in Physics, but it doesn’t take much grasp of the physical laws of our planet to realize the impossibility of that trick.
Old people who find themselves in need, I’m sure it’s the same deal, if you are old, and weak, and don’t have a boatload of money, who is to blame but you? Sick people? Same deal. An elected Republican talking head said a few weeks ago, about the proposed dismantling of the ACA, that people who lead good lives and make good choices don’t need much health care, because they’re healthy. Spontaneous, painful cancer of his brain would fix that particular spokesman for psychopaths, in my humble, if merciless, opinion.
The failure to admit wrongdoing is a society-wide pathology. It’s not limited to CEO-types or restricted to any political ideology. I saw Elizabeth Warren being interviewed by Bill Maher a few weeks back. Maher got in deep shit the other day for an ad lib referring to himself as a “house nigger.” There’s no real dispute as to the accuracy of the characterization, the slave is very privileged, it’s only that he chose a taboo, incendiary word to describe it. Anyway, the “house nigger” (got to love quotation marks) was interviewing Senator Warren not long ago. I admired Warren very much when she first came on the public scene. Her careful party politics and recent votes for some of Trump’s worst cabinet picks irked me, as did her weak ass rationales for her votes.
At one point Maher asked her if the Democratic party bore any responsibility for losing the presidential election to the most widely hated presidential candidate ever. Warren danced away from the question adroitly and Maher let her dance. She would not allow that the Democratic party had anything to do with the loss, or the swing in Congress, or the rash of new Republican governors.
I sat there watching her calmly avoid the question and jump to her talking points and a bit more of my respect for Senator Warren dribbled away. Reminded me of the old “how do you know when a politician is lying?” You know, when their lips are moving. Et tu, Elizabeth? Even as I recall how most elections are decided on gut feelings based on gotcha sound bites, how every national politician has to play the careful public relations game in our advertising culture. I get how the sound bite of Warren criticizing her party would be used endlessly against her, but there was a way to answer the question that would have shown more integrity than her poised pivot.
I’m reading Amy Goodman’s book and I am full of admiration for her life’s project of searching for and revealing the truth. It is painful, to look closely at our recent history, to see terrible things that were done in our name, are being done right now. The worst of it is reading how these terrible things are spun, to profit those without conscience and protect the architects of murderous programs. Much as I am engrossed in the book, I am also wondering if it is not a bit masochistic for me to look at these awful things so closely. Then I realize it is my obligation as a citizen, that looking squarely at the facts of terrible things done in our name is a solemn duty, if we are to live in a meaningful democracy.
My father would never drive a German car, buy a German camera, use any German product. He’d describe to us how Mercedes Benz (maybe it was BMW, maybe it was both) was involved in building machines to help the Nazis kill and dispose of Jews. He would recite similar details, that I have forgotten, about other well-known German corporations. The point is, it’s not hard to trace the complicity of German corporations in Hitler’s mass murder machine. A lot of shrewd businessmen, in Germany and elsewhere, made a killing during the Nazi years. Fuck, if Monsanto could hire slave laborers from the SS for $1 a day, don’t you think they’d do it? Their shareholders would demand it. It would be irresponsible of them not to do it.
I asked my father at one point if the Vietnamese had the same right to hate us because of what our country was doing to them. He said they absolutely did. Even as the vast anti-war marches I participated in were taking place, even as I told myself I’d burn my draft card or go to Canada if it came to it. It was confusing to a teenager that I was responsible for what the war-mongers in my country were doing, doing against my will. I believe my father was basically right on this count of national responsibility. Even if there was nothing we could possibly do about it. Even if the vast majority of us were nothing like the brave Germans who were hunted, tortured and killed by the Nazis for being more loyal to humanity than to their infallible leader, Mr. Hitler.
“It always comes down to Nazis to you,” a friend reminds me with a smile. I remind him that I may be overly sensitive on the subject because twelve of my mother’s aunts and uncles were shot in the head at the request of Nazis visiting their town. Because the hamlet my father’s people come from was plowed into the swamp without a trace, along with everyone but his mother and his uncle. Life is no different for civilians fleeing from Mosul today than it was for my family in 1943. Why are there explosions everywhere, and gunfire, and bombing, doors being kicked in, piles of corpses? Because the U.S. invaded Iraq in 2003 to free those poor, oppressed people from a monster.
I know, I’m being very unfair. How is it our fault? Saddam Hussein was like Hitler, after all, we did the right thing to invade, execute Saddam’s two sons in a hail of bullets, give Saddam a good old fashioned Texas-style lynching under cover of darkness, as all good lynchings should be done. Was Dick Cheney that much different from Saddam Hussein when it came to brutal coercion and willingness to unleash large-scale violence? I know, I know. I should get over it. Obama owned the war once Cheney left office. Dick Cheney will never be held accountable for his crimes, even if anyone could prove them. Obama will be our first self-made billionaire ex-president. He is already well on his way. Besides, as Diane Feinstein said of David Patraeus after he was allowed to skate for sharing thousands of classified emails with his mistress, haven’t these men already suffered enough?
I am left with my admiration for people like Amy Goodman, and there are far too few of them. Bill Moyers was in many ways like Amy. A broadcast journalist in search of the truth, and bold in reporting it, wherever the search led. It is because of their reporting that we can understand, on an institutional level, how an American man can be cleared of murder after getting out of his car to confront and shoot to death an unarmed black teenager who was minding his own business. It is, we are told, because of Florida’s “Stand Your Ground” law.
What is “Stand Your Ground”? Thanks to their investigative reporting we understand that it is a law drafted by a far right corporate lobbying outfit called ALEC. They introduced the model bill in many state houses, it became law in more than twenty-eight so far, including, not that surprisingly, the entire former Confederacy. It extends the “Castle Doctrine”, the right to defend yourself with deadly force if confronted with violence in your own home, to everywhere you might feel threatened. In some jurisdictions you have a duty to retreat, if you can do so safely, before you can use deadly force. Not so under “Stand Your Ground”.
If you’re terrified of young black men, for example, it may not be unreasonable, depending on your fear, to shoot them in the face in any public place where you have a right to be. It’s the law in Florida and in a majority of these United States, a matter for a jury of your peers to decide. A troubled vigilante-style killer with a long history of domestic violence walked thanks to a successful “Stand Your Ground” defense. In fairness to him, George Zimmerman, his father was also a local magistrate.
Democracy is not democracy without informed debate. If secret deals are made, and laws are skirted, and lobbyist-written laws promulgated, by little known, very powerful outfits like ALEC, and we are never even informed of the existence and influence of ALEC, the politically active billionaire Koch Brothers and their ilk– how are we to have a democracy?
The choice is made for us behind closed doors about what kind of nation we are. We are a nation that shoots people in the face, in the back, in the spine. Not long ago we shot an eight year-old girl in the spine and let her take her time dying. It was in Yemen, a nation we are not at war with, during the new president’s first SEAL team moment of glory. The girl was Anwar al Awlaki’s daughter Nora. We are a nation that doesn’t get fucked with. You’d better fucking believe it.
I don’t know what gives Amy Goodman the strength to carry on, producing and hosting Democracy Now! as she has been doing daily for the last twenty years. All I know is that I am very thankful for her work. And that we need democracy, now, more than ever.